Summary
Heidi Wallis is an executive director and nonprofit leader with nine years of professional experience driving strategy, advocacy, and research for rare metabolic disorders as head of the Association for Creatine Deficiencies. She combines program leadership and community outreach with technical public-health informatics experience—having led statewide HL7 messaging, LIMS and chain-of-custody implementations at the Utah Department of Health—to improve newborn screening and laboratory workflows. A two-time PCORI project lead and former Chan Zuckerberg Initiative Rare as One organization lead, she sits on multiple expert panels and advisory committees influencing newborn screening policy and variant curation. Heidi’s background blends operations, web development training, and hands-on informatics coordination, which helps her translate clinical needs into practical technology and policy solutions. Based in Salt Lake City, she brings a personal connection to the mission and a track record of forging partnerships that accelerate research, education, and patient support.
9 years of coding experience
12 years of employment as a software developer
Bachelor of Science, Business Management, Bachelor of Science, Business Management at Western Governors University
Full Stack Web Development Certificate, JavaScript, Full Stack Web Development Certificate, JavaScript at Dev Point Labs